Entocort medicine
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Q: Entocort EC for IBD ?
I am having a “flare-up” with my IBD and my doctor prescribed Entocort EC. I am concerned about the fact that grapefruit can increase the amount of Entocort in my blood.
1) Can I eat grapefruit, and how much can I eat, and
2) Will I most likely be able to stop taking the medicine after my flare-up is over? I also take Pentasa.
A: hi x, I am a crohnie like yourself. I’ve been on Entocort for a awhile. I don’t eat grapefruit as I don’t want any problems. Ask your GI or pharmacist how much you can eat.
As for stopping the medication, I was told that I’d be on it for a lifetime unless a problem arises. Ask your GI about it.
For more information on crohn’s, check out the crohn’s and colitis foundation’s site. It has tons of stuff like the latest meds, diet, women’s/men’s issues, surgery, coping, a hotline, a live chat, and an open forum where you can post questions to others like yourself.
My heart goes out to you as I am in a flare as well. Being in pain stinks and feeling like nobody understands what you are going through is just as bad. I hope you feel better soon.
Q: I have Crohn’s and need help?
I was diagnosed with Crohn’s in February of last year, due to an abscess that nearly ruptured. I can remember having symptoms as far back as 1996 and have basically been sick since I was around 10 (1990 or so) First, I am wondering if the fact that I had intestinal worms in 2nd grade could have weakened my immune system or my intestines and lead to my autoimmune problems and Crohn’s.
Second, I am terribly sick and don’t know what to do. My GI is less than friendly and makes me wait 6 months between appointments. Asacol made me sicker and Entocort made me crazy, I can’t tolerate a lot of medicines and don’t know what the next step is. I can’t eat fresh fruits and veggies because they make me sick and I have a really hard time with oatmeal, cream of wheat, even the blandest of the bland foods can make me sick and I don’t know what to do. I keep eating because I have to, but the pain is getting unbearable. I am really scared of being put in the hospital again. Any advice?
A: I was diagnosed with crohn’s my sophomore year of high school i’m now getting ready to graduate college and i’m happy to say i’m doing well. initally though it is rough getting your body retrained. i will tell you though i went through two GI doctors before i found one that really took me seriously. some doctors just don’t care. get one who listens to you. 6 months is standard between appts when you’re doing well and obviously you’re not!! I’ve been on both asacol and entocort. i’m actually on asacol now but my cousin had bad reactions to both of them. do some research on mecaptopurine. it’s actually given to cancer patients but it’s what i credit for my wellbeing. i take 75 mgs a day and it really helps. bring that up to your doctor and see what he says. if he doesnt listen find a new doctor. I’m curious if they’ve done a colonoscopy to see the severity of it. if not they need to! as far as foods go it is terribly hard initially but don’t lose hope-i drink beer, coffee, milk, soda and eat pretty much anything i want. sometimes i regret it in the morning but it doesn’t ruin me. eat lightly. try white rice or dry white toast. Other suggested foods would be saltines, bananas, applesauce, hard boiled eggs, baked chicken plain, jello, etc. just eat a little at a time so your stomach can digest. I would seriously advise you to find a new doctor though. find one you’re comfortable with who will listen to. ask your family doctor to recommend someone a little more user friendly. if you need anyone to talk to about this my email is addie715@yahoo.com. i’ve been living with this for seven years and have even had surgery for it. i’ve been through a lot with it so i have a lot of advice to offer, feel free to contact me for any advice or questions.
Q: I need crohn’s help and tips?
I was diagnosed with crohn’s back in January 2010. My doctor tells me it is severe. Yet, I’m not experiencing symptoms as severe as others with crohn’s. Well, anyway, since then he’s put me on pentasa and entocort. I didn’t have abdominal pain except for once (no diarrhea), before they found out I had crohn’s. But since I started receiving meds for it, pentasa and entocort, pain has made itself well known and sometimes forced me to stop where I was and not move.
They couldn’t give me a immune suppressant because of my epstein barr virus levels being high. But the levels went down and they finally gave me the go ahead. Well, I don’t like the idea of suppressing my immune system leaving me to an increased risk to lymphoma and infection. I just don’t like taking the gamble when the risks are greater than the pro’s. A few days before they had given the go ahead on the immune suppressant, my stomach started to ache. Well, since I started a probiotic and yogurt diet, I no longer have pain in the colon and small intestine areas. But now, I’m having what seems to be severe flares in my stomach. Which are so random and so bad that at times, I have to pull off to the side of the road.
I think it might be crohn’s creeping into my stomach cause I doubt its a common ulcer. They didn’t see any ulcers when they looked inside my stomach. (Back in January) I’m on cemetidine and omeprazole since months before they found out I had crohn’s. Probably since september.
So my real question is, are there other supplements that I can take to combat crohn’s or relieve the pain in my stomach? Does anyone know what kind of other medicines are usually used for crohn’s that aren’t steroids or immune suppressants?
A: Keep a food diary. Not everyone has problems with the same foods. Some have a problem with fiber others don’t. After about a month you should know which foods to stay away from. I’m sure you have looked chrohns disease up on the computer so you know just as much as me as far as treatments go. There are medical and alternative suggestions such as hookworms,acupuncture and cannabis. Sometimes people can have problems with the very drugs they are taking that are supposed to help.(reglan&prilosec). You also should not take reglan for more than 3 months.(look it up).Good luck with your search.
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